Nýtt frá Eslu

Elsa var að senda mér póst sem ég læt fylgja hér fyrir neðan:

 

Mike and I are thinking about going to DC pending the outcome of my latest PET scan that I had on last Friday.  I should get the results on Wednesday, I hope so. If the PET scan shows NO new brain tumor growth I can stay on my regularly scheduled chemo cycles.  If there is a new tumor I might need radiation, or if the scan shows some scar tissue or infection I might need another surgery.  I have a feeling it is all going to be OK and we are going to hopefully make some difference  during Brain Tumor Action Week.   Please read the note below.

Take care,
Elsa

Brain Tumor Action Week, May 4-10, is a function of the North American Brain Tumor Coalition.
Its purpose is to heighten awareness about brain tumors and to advocate for increased research funding and legislation that affects the 360,000 people who are living with the diagnosis of a brain tumor.  To participate in your community, ask your local hospital, library or physician's office to set-up a display on brain tumor resources that week. You can order free, informational materials for your display by sending your name, address, and the dates of your exhibit, to the ABTA at http://mc587.mail.yahoo.com/mc/compose?to=[e-mail]

Details about Brain Tumor Action Week activities in Washington DC are available at http://hope.abta.org/site/R?i=4YbUdfisswtGRu10tGfY2g..
Also note other nationwide BT events at: http://www.abta.org/index.cfm?contentid=41

Register TODAY for Brain Tumor Action Week in Washington, DC on May 5 and 6

March 18, 2008

SPEAK UP FOR BRAIN TUMOR PATIENTS.  Join the North American Brain Tumor Coalition in Washington, DC on May 5 and 6, 2008, to press the case for brain tumor research and care.  Despite the efforts of some of the world's finest researchers to develop better therapies, individuals with brain tumors still do not have adequate treatment choices.  In fact, the outlook for brain tumor patients has not improved significantly in the last 20 years.  You can help change that situation by joining us in the fight for a stronger brain tumor research program - that means more federal dollars for brain tumor research, stronger support for translational and clinical brain tumor research programs, and enhanced collaboration among brain tumor researchers. 

 The NABTC is also working to remove barriers to quality care through elimination of the Medicare waiting period.  Your voice is needed to persuade Congress to enact legislation to end the two-year waiting period to receive Medicare benefits.

These issues will be pressed in the Congress during Brain Tumor Action Week. 

Get involved by joining us in Washington, DC.   On May 5, from 9 am until 5 pm, brain tumor advocates will participate in an education day at the Washington Circle Hotel at One Washington Circle in DC.  We will hear from brain tumor researchers, officials responsible for managing the brain tumor research effort at the National Institutes of Health, and other advocates.  Educational presentations will help advocates prepare for a day of Hill visits on May 6, which will be scheduled for registered advocates.  

Please go to http://www.nabraintumor.org/registration08.html to register online.  Details of the registration process are available there. 

If you cannot join us in DC, we encourage you to take action in your community during Brain Tumor Action Week from May 4 to 10.  One activity you might consider is obtaining a proclamation for Brain Tumor Action Week from your state legislature, governor, city or county council, or mayor.  Please see the sample proclamation available on the website. http://www.nabraintumor.org/wp/wp-content/uploads/2008/03/sample-resolution-for-btaw.pdf